In the UK, around 15,000 people live with sickle cell. Yet, this conditionremains overlooked, underfunded, and misunderstood – in our hospitals, in research, and even in our communities. During Sickle Cell Awareness Month, I want to share what I’ve learned from listening to Black mothers, patients, and patient advocates – and ask why, after all these years, are people still not listening?

Whose voices count in healthcare? Whose pain is believed? Whose futures are valued?